Determinants of developing a pilot of coordinated care model for patients with multiple sclerosis in Poland

• Autorzy: Wiktorzak K. , Szfraniec-Byrylo S. , Jaworska U. , Brzozowska M. , Wierzba W. , Sliwczynski A. , Kurpas D.
• Języki publikacji: EN

Abstrakty

EN

Background: Multiple sclerosis is a chronic and highly debilitating disease with very high economic and social consequences. Designing changes to improve the functioning of the healthcare model primarily requires learning about the needs of beneficiaries. Aim of the study: The purpose of our study is the results’ description and summary of conclusions of the research conducted in the past years. These results are currently being used for the construction of a coordinated care model for MS patients. Material and methods: One questionnaire survey addressed to MS patients, carried out between 01.12.2013 and 01.02.2014 and the second one addressed to Polish and European medical professionals, carried out between 01.09.2016 and 04.10.2016 performed in 51 European centers and 2 branches of the Turkish Association of patients with MS. Results: In the first survey 84.4% patients declared that during the illness they received mental support mostly from their family: 48.5% received it from physicians; 42.1% from a nurse. 64.8% of the respondents declared that they received no support from social organizations and 77.6% received no support from religious organizations. According to the results of the survey for healthcare professionals in Poland and Europe, in 54.9% of the European institutions and in 22.4% of the Polish institutions, dedicated IT systems are used for processing MS patients’ data. Among institutions using IT, 52.9% of the European and 10.1% of the Polish ones keep the patient’s entire documentation, as well as a patient satisfaction survey, in an IT system. Conclusions: Based on our studies described above, the patients’ needs, resources and capabilities seem to indicate that the scale of system inefficiencies is such that remodeling care for this well-defined group of patients is justified and feasible.

• Wydawca: -
• Czasopismo: Medical Science Pulse
• Rocznik: 2019
• Tom: 13
• Numer: 2
• Opis fizyczny: p.11-17,fig.,ref.

Twórcy

autor

Wiktorzak K.

• Analysis and Strategy Department, Central Office, National Health Fund, Hankiewicza 2, 02-103 Warsaw, Poland

autor

Szfraniec-Byrylo S.

• Department of Pharmacoeconomics, Institute of Mother and Child, Warsaw, Poland

autor

Jaworska U.

• Urszula Jaworska Foundation, Warsaw, Poland

autor

Brzozowska M.

• Drug Economic Department, Central Office, National Health Fund, Warsaw, Poland
• Division of Quality Services, Procedures and Medical Standards, Medical University of Lodz, Lodz, Poland

autor

Wierzba W.

• UHE Satellite Campus in Warsaw, University of Humanities and Economics in Lodz, Warsaw, Poland

autor

Sliwczynski A.

• Department of Health Services, Central Office, National Health Fund, Warsaw, Poland
• UHE Satellite Campus in Warsaw, University of Humanities and Economics in Lodz, Warsaw, Poland

autor

Kurpas D.

• Wroclaw Medical University, Wroclaw, Poland

Bibliografia

• 1. Ustawa z dnia 27 sierpnia 2004 r. o świadczeniach opieki zdrowotnej finansowanych ze środków publicznych. Dz.U. 2004 nr 210 poz. 2135 [online] [cit. 10.10.2018]. Available from URL: http://prawo.sejm.gov.pl/isap.nsf/download.xsp/WDU20042102135/U/D20042135Lj.pdf. (In Polish).
• 2. Orlewska E, Mierzejewski P, Zaborski J, Kruszewska J, Wicha W, et al. A prospective study of the financial costs of multiple sclerosis at different stages of the disease. Eur J Neurol 2005; 12(1): 31–39.
• 3. Naci H, Fleurence R, Birt J, Duhig A. Economic burden of multiple sclerosis: a systematic review of the literature. Pharmacoeconomics 2010; 28(5): 363–379.
• 4. Campbell JD, Ghushchyan V, Brett McQueen R, Cahoon-Metzger S, Livingston T, et al. Burden of multiple sclerosis on direct, indirect costs and quality of life: National US estimates. Mult Scler Relat Disord 2014; 3(2): 227–236.
• 5. Owens GM. Economic burden of multiple sclerosis and the role of managed care organizations in multiple sclerosis management. Am J Manag Care 2016; 22(6 Suppl): 151–158.
• 6. Kobelt G, Thompson A, Berg J, Gannedahl M, Eriksson J; the MSCOI Study Group and the European Multiple Sclerosis Platform. New insights into the burden and costs of multiple sclerosis in Europe. Mult Scler 2017 Jul; 23(8): 1123-1136.
• 7. Naci H, Fleurence R, Birt J, Duhig A. The impact of increasing neurological disability of multiple sclerosis on health utilities: a systematic review of the literature. J Med Econ 2010; 13(1): 78–89.
• 8. Opieka Koordynowana w Stwardnieniu Rozsianym. Analiza porównawcza badań ankietowych prowadzonych w polskich ośrodkach neurologicznych oraz europejskich ośrodkach leczenia stwardnienia rozsianego [online] [cit. 11.10.2018]. Available from URL: https://fundacjauj.pl/wp-content/uploads/2018/07/Raport-Porownawczy_POL _EU R.pdf. (In Polish).
• 9. Opieka Koordynowana w Stwardnieniu Rozsianym. Raport z badania – ośrodki neurologiczne w Polsce [online] [cit.11.10.2018]. Available from URL: https://fundacjauj.pl/wpcontent/uploads/2018/07/raport_opieka_koordynowana_POL -SKA.pdf. (In Polish).
• 10. Opieka Koordynowana w Stwardnieniu Rozsianym. Badanie ankietowe ośrodków leczących SM w Europie [online] [cit.11.10.2018]. Available from URL: https://fundacjauj.pl/wpcontent/uploads/2018/07/raport_opieka_koordynowana_EU ROPA_ver_polska.pdf. (In Polish).
• 11. Badania ilościowe [online] [cit. 9.10.2018]. Available from URL: http://almares.com.pl/badania-ilosciowe/. (In Polish).
• 12. Jacyna A, Śliwczyński A, Stachurski J, Zbylut M, Gałek J, et al. The prevalence and the direct treatment costs of therapy for multiple sclerosis in Poland in the years 2008–2016. Medical Studies 2018; 34 (1); 9–14.
• 13. Ustawa z dnia 27 sierpnia 2004 r. o świadczeniach opieki zdrowotnej finansowanych ze środków publicznych. Dz.U.2008 nr 164 poz. 1027 [online] [cit. 10.10.2018]. Available from URL: http://prawo.sejm.gov.pl/isap.nsf/download.xsp/WDU20081641027/U/D20081027Lj.pdf. (In Polish).
• 14. Ministerstwo Zdrowia [online] [cit. 13.10.2018]. Available from URL: http://www.mz.gov.pl/wwwmz/index?mr&ms&ml=pl&mi=92&mx=0&ma=10772. (In Polish).
• 15. Międzynarodowa Statystyczna Klasyfikacja Chorób i Problemów Zdrowotnych ICD 10. Rewizja dziesiąta. Tom I. Kraków: Uniwersyteckie Wydawnictwo Medyczne “Vesalius”; 2006. (In Polish).
• 16. Akademia NF Z [online] [cit. 8.10.2018]. Available from URL: https://akademia.nfz.gov.pl/6977-2/. (In Polish).

Identyfikatory

DOI

10.5604/01.3001.0013.0543