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2024 | 75 | 1 |

Tytuł artykułu

Parents’ perceptions of morbidities and some functional abilities in people with down syndrome in Morocco

Treść / Zawartość

Warianty tytułu

Języki publikacji

EN

Abstrakty

EN
Objective. This study aimed to assess parental perceptions of morbidity and certain functional abilities in people with Down syndrome (DS) and their variability according to age and sex in Morocco. Material and Methods. A retrospective and analytical survey was conducted between May 2014 and November 2017, and addressed to the parents of 279 individuals with DS, including 161 boys (57.7%) aged 1-40 years. The sample was subdivised to tree age groups, children under 10 years old, adolescents aged 10-18 years and adults aged ≥ 18 years. Information about the identity of parents, age and sex of people with DS, their morbidity during the two years preceding the survey, and some functional abilities was collected. Data were entered and analyzed using the statistical program SPSS statistics software for Windows (version 20.0). Chi-square (χ2) test was used for testing statistical significance. Differences were considered significant when the p-value <0.05. The multivariate analysis were used to identify the causes of morbidies independently associated with age and sex of child. Associations were measured in Odds ratio (OR) with 95% confidence intervals (95% Cl). Results. The most common factors of morbidity registered in the study sample with DS, included respiratory infections, visual disturbances, oral pathologies, and cardiac problems (75.4%, 72.1%, 59.3%, and 44.9%, respectively). The hearing deficit, cardiac problems, respiratory infections, and oral pathologies showed statistically significant differences among the three age groups. According to the participants parents’ perceptions, half of them (50%) were able to walk at 30 months, talk at 72 months, sit at 16 months, crawl at 16 months and eat alone at 48 months old. Conclusion. People with DS at different ages present a set of potentially treatable diseases that require multidisciplinary medical monitoring. They also need early paramedical care to improve their functional abilities.

Słowa kluczowe

Wydawca

-

Rocznik

Tom

75

Numer

1

Opis fizyczny

p.101-106,ref.

Twórcy

autor
  • Laboratory of Anthropology, Biotechnology, Department of Biology, Faculty of Sciences, Chouaib Doukkali University, El Jadida 24-000, Morocco
autor
  • Laboratory of Pharmacology, Neurobiology, Anthropobiology and Environment, Department of Biology, Faculty of Sciences Semlalia, Cadi Ayyad University, Marrakesh, Morocco
autor
  • Laboratory of Biotechnology, Biochemistry, and Nutrition, Training and Research Unit on Nutrition and Food Sciences, Department of Biology, Faculty of Sciences, Chouaib Doukkali University, El Jadida 24-000, Morocco
autor
  • Laboratory of Pharmacology, Neurobiology, Anthropobiology and Environment, Department of Biology, Faculty of Sciences Semlalia, Cadi Ayyad University, Marrakesh, Morocco
autor
  • Laboratory of Anthropology, Biotechnology, Department of Biology, Faculty of Sciences, Chouaib Doukkali University, El Jadida 24-000, Morocco

Bibliografia

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  • 9. Hennequin M, Faulks D, Veyrune JL, Faye M. Le syndrome bucco-dentaire affectant les personnes porteuses de trisomie 21. L’information dentaire 2000;26:1951-1964.
  • 10. Cohen MM, Cohen MM Jr. The oral manifestations of trisomy G-1 (Down syndrome). Birth Defects 1971;7(7):241-51.
  • 11. Palisano RJ, Walter SD, Russell DJ, Rosenbaum PL, Gémus M, Galuppi BE, et al. Gross motor function of children with Down syndrome: Creation of motor growth curves. Archives of Physical Medicine and Rehabilitation 2001;82:494–500.
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  • 13. de Asua DR, Quero M, Moldenhauer F, Suarez C. Clinical profile and main comorbidities of Spanish adults with Down syndrome. Eur J Intern Med 2015;26(6):385-91.
  • 14. Pikora TJ, Bourke J, Bathgate K, Foley KR, Lennox N, Leonard H. Health conditions and their impact among adolescents and young adults with Down syndrome. PLOS ONE 2014;9(5):e96868.
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  • 17. Stensson M, Norderyd J, Van Riper M., Marks L. Björk M. Parents’ perceptions of oral health, general health and dental health care for children with Down syndrome in Sweden. Acta Odontologica Scandinavica 2020. DOI: 10.1080/00016357.2020.1824015.
  • 18. Zachariah P, Ruttenber M, SimÕes EAF. Down Syndrome and Hospitalizations due to Respiratory Syncytial Virus : A Population-Based Study. J Pediatr 2012;160(5):827-31.
  • 19. O’Leary L, Hughes-McCormack L, Dunn K, Cooper SA. Early death and causes of death of people with Down syndrome: a systematic review. Journal of Applied Research in Intellectual Disabilities 2018;31(5):687–708.
  • 20. Marder L, Tulloh R, Pascall E. Cardiac problems in Down syndrome. Paediatrics and Child Health (United Kingdom) 2015;25(1):23–9.
  • 21. Metcalfe K. Cardiac problems in genetic syndromes. Paediatrics and Child Health 2018;28(12):574-578. https://doi.org/ 10.1016/j.paed.2018.10.005.
  • 22. Yaqoob M, Manzoor J, Hyder SN, Sadiq M. Congenital heart disease and thyroid dysfunction in Down syndrome reported at Children’s Hospital, Lahore, Pakistan. The Turkish Journal of Pediatrics 2019;61:915-924.
  • 23. Pierce, M. J., LaFranchi, S. H. & Pinter, J. D. Characterization of thyroid abnormalities in a large cohort of children with Down syndrome. Hormone Res Paediatr 2017;87:170–178.
  • 24. Sankar HV, Anjukrishna K, Riaz I. Thyroid Stimulating Hormone Level at Diagnosis as a Predictor of Persistent Subclinical Hypothyroidism in Children with Down Syndrome. Indian Pediatr 2018;55:576–578.
  • 25. Salih DJ, Matlob RM, Yalda MI, Faraj DQ. Thyroid Dysfunction in Down syndrome Patients; Clinical and Chromosomal Correlation. Online Türk Sağlık Bilimleri Dergisi 2020;5(2):347-355.
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Typ dokumentu

Bibliografia

Identyfikatory

Identyfikator YADDA

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