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Caring for patients with Huntington disease - a survey of caregivers’ experiences and views

100%
Domaradzki J.
Journal of Pre-Clinical and Clinical Research
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2015
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tom 09
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nr 2
Introduction. Despite the growing interest in the consequences of caring for patients with Huntington disease (pHD), little is known about the family caregivers of such patients in Poland. Identification of their needs can improve caregivers’ wellbeing, the quality of care and condition of pHD. The aim of this study was to understand the social functioning of family caregivers of pHD and their perception of the caregiving role. Materials and methods. Data was collected from 55 family caregivers of pHD. A structured questionnaire was used consisting of 86 questions subsumed into five domains: ‘Problems’ and ‘Feelings related to caregiving’, ‘Attitude toward caregiving’, ‘Satisfaction with life’ and ‘Perception of healthcare services’. Correlations between the different scales and other characteristics were measured as potential predictors of the burden. Non-parametric statistical methods were used in the analysis. Results. Most respondents experienced a high (50.9%) or moderate (30.95%) feeling of burden. Although 70.9% of caregivers perceived caregiving positively, for many it was a source of negative feelings. Only 10.9% of respondents declared that caregiving decreased their QoL. Carers’ perception of caregiving was mostly influenced by their negative experiences with the healthcare system. Respondents’ domicile, religious practices, age, income, marital status, time of diagnosis and of caregiving, patient’s age and stage of disease also influenced their experiences. Conclusions. Health professionals and policy planners should focus on monitoring caregivers’ health, identifying their needs, sources of distress, and supporting caregivers’ coping strategies. They should also be better educated about the clinical and practical aspects of HD.
2
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Patient rights, risk, and responsibilities in the genetic era – a right to know, a right not to know, or a duty to know?

100%
Domaradzki J.
Annals of Agricultural and Environmental Medicine
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2015
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tom 22
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nr 1
3

Reliability of Functional Movement Screen and sexual differentiation in FMS scores and the cut-off point among amateur athletes

63%
Domaradzki J., Kozlenia D.
Trends in Sport Sciences
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2020
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tom 27
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nr 2
Introduction. Functional Movement Screen (FMS) is a tool used in injury prediction based on the quality of movement patterns. Crucial is to determine the cut-off point which indicates the injury risk increment. Most of the researches regard professional athletes. Aim of Study. The aim of this study was to determine the reliability of the FMS test, and sexual differentiation in the value of the FMS total score test and subtests. Furthermore, the study aimed to evaluate the values of injury risk cut-off point in the FMS test in young male and female individuals from the moderately-active population. Material and Methods. The study group consisted of 89 physically active individuals not involved in high-performance sport: 42 males aged 20.5 ± 1.10 years, and 47 females aged 20.0 ± 0.68 years. FMS, a questionnaire concerning the previous injury history of 12 months preceding the study were used. The interclass correlation coefficient (ICC) was used to evaluate the reliability of the FMS test and a receiver operating characteristic curve (ROC) for FMS cut-off scores was calculated. Results. The FMS test showed excellent agreement between two screenings. There were some differences in the quality of movement patterns between men and women in subtests. The values of injury risk cut-off scores were different between sexes, 14 points for males and 17 points for females. Conclusions. The FMS test is a highly reliable research tool. For the average population of physically active young male and female amateur athletes, the cut-off score values in the FMS test should be evaluated separately between sexes to determine injury risks.
4
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Ryzyko urazów incydentalnych i nawracających wśród młodych zawodników wybranych gier zespołowych

63%
Kozlenia D., Domaradzki J.
Sport i Turystyka. Środkowoeuropejskie Czasopismo Naukowe
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2020
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tom 03
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nr 3
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